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Showing posts with label kidneys. Show all posts
Showing posts with label kidneys. Show all posts

Sunday, January 27, 2013

Almost Done!

I am starting my last week of chemotherapy!  [insert happy dance]

I can't believe that it has already been three months since I was in the hospital, having all kinds of tests being run, and finally being told that I had this weird auto-immune kidney problem.  

Each week I start a new set of pills...


It always seems so daunting.


Except when I have this little guy to help me.  "Mom, can I help you take the med-cine?  Did you take it all? It'll make your kidneys better, Mom!"  

Bryan and I find it funny that the chemotherapy pills are blue.  It reminds us of The Matrix


Maybe that's why I've been so out of it; I'm taking TWO blue pills every morning.  Of course, I'm not sure about taking the red pill either.

I'll just be happy when I can take NO pills.  

Tuesday, January 22, 2013

Pity, Party of One?


I caught myself throwing a little pity party for myself the other day...I didn't know I was planning one, much less attending, and suddenly BAM!  There I was, all pity-partying away by myself.  Funny how that happens.  

I am so grateful that I am getting well from this crazy kidney problem I'm having, and that I have so much help, that it really makes me feel guilty when I start feeling discouraged about things.  This is normal, I think.  At least I hope.

But you see -- here's where I'm coming from.  I'm a mama two very busy little boys.  I'm a wife.  I run our household.  I have many responsibilities!  And (mostly) I enjoy them.  When I became ill, I didn't realize how much I did...until I couldn't do anything.  It was quite humbling to have to ask for help.  And I had to ask for help.  I could barely walk across my house, much less wash dishes, do laundry, and most importantly, take care of my boys.


Praise God, I received the help I needed through dear friends and my amazing mother-in-law.

So why was I feeling sorry for myself?  Well, one side effect of steroids is a puffy face.  One day I couldn't figure out what was going on with my FACE.  Or rather, my eyes.  What are those things like a horizon?


Why, those are my CHEEKS.  I had become Mrs. Puffalumpacus.  (Just my own name for myself.)  I am looking down, over the horizon of my own cheeks!  And my glasses keep bumping into them. 

In addition to my puffy cheeks, my tummy started puffing out.  And my hands swelled up.  A double chin developed.  And if that wasn't bad enough...

...one day I looked in the mirror and I saw it.

THE 'STACHE.

Mustache, to be exact.  Yep, I've got facial hair.  Even some sweet sideburns to top off the deal.

Thank you, steroids.

Though maybe it's the steroids that are keeping me from losing all the hair on my head?  Hmmm...well, I'll try to get a photo of my hairy-ness.  So far nothing is turning up on camera.  Bryan says it's because it isn't really there.   But I tell you -- it's there.

Anyway, I was feeling sorry for me.  Poor me.  Can't take care of my home, my kids.  Got a puffy face, double chin.  Sportin' a 'stache and sideburns.

And then I remembered that I am ALIVE.

And that I am going to GET WELL.  Be HEALTHY again.

Eventually, I'll lose the facial hair, the puffiness.  I'll be able to take care of my home and my family again.

This is just a season.  I need to focus on each day, and see what God would have me learn during this season.  So even though it's difficult at times, we will get through it together, the Lord and me.

I waited patiently for the Lord;
And He inclined to me,
And heard my cry.
He also brought me up out of a horrible pit,
Out of the miry clay,
And set my feet upon a rock,
And established my steps.
He has put a new song in my mouth --
Praise to our God;
Many will see it and fear,
And will trust in the Lord.

Psalm 40:1-3

Wednesday, December 19, 2012

Random things I've learned since I've been sick...

...in no particular order:

  1. People in the medical profession are absolutely amazing.  I could never do what they do.  And I'm so thankful that they know how to do what they do.
  2. Kidney failure really messes up your taste buds.  So does chemotherapy. Or maybe it's the steroids.
  3. When on a low-sodium diet, one realizes everything contains sodium.  (Also, sodium is what makes everything yummy.)
  4. Hot chocolate makes the yuckiest, chalkiest pills go down easily.
  5. Steroids make my face very puffy and round.
  6. Help from family and friends is like a hug from God.  (Sounds cheesy, but really...it's true.)
  7. Naps really do make everything better.
  8. No matter how sick I am, ice cream always makes life seem more bearable.
  9. I do not look good with a round, puffy face.
  10. Coffee really is my favorite.  Even when it didn't taste good to me.  (see #1)  (I just "made do" with hot chocolate until coffee tasted good again.)
There are more...I'll share as they come to me.  Oh yes, people, I am a fount of wisdom these days.  

(If you are confused, see my last post about how my kidney beans failed me.)

Thursday, December 6, 2012

Tale of My Kidney Beans


I know that I haven’t posted in a while…okay, it’s been nearly four months!  I've had good reason, though (this time).  Well, the first month I was just “busy with life” – all the fall activities started up, our schedule changed, and of course writing fell off the priority list quickly. 

But then, very randomly, I became sick.  Not “cold” sick, but very ill.  It’s kind of a long story, but what I thought was starting out as some sort of infection, then maybe pregnancy (which it was NOT), turned out to be, of all things, kidney failure.  By October, I knew something was very wrong (I had extreme fatigue and nausea, among other things), and it took until nearly the end of October (and a hospital stay, including a biopsy of one of my kidneys) to get a diagnosis. 

So I've been recovering from an auto-immune kidney illness that is called ANCA Vasculitis, with a secondary diagnosis of IgA Nephropathy (another auto-immune illness).  I am not a medical person, and I have never had any kidney problems in my life, nor has anyone in my family, so I am still trying to make heads and tails of this thing.  So don’t ask me to try to explain it very well, because I can’t!  All I know is that for no particular reason, my body decided to attack my kidneys and shut them down.  By the time I made it into the hospital, my kidneys were only functioning at 12%.  It was crazy!  Here I am, a healthy 35-year-old, with failing kidneys.

Me and my Ben, just before I became ill.

But praise God!  I am going to get better, and I am getting better.  The treatment for this illness is daily oral doses of steroids (Prednisone) and chemotherapy (Cytoxan).  And of course I’m taking all kinds of other medications to help off-set the side effects of the steroids and chemo.  The medications are working, though – blood work last week showed that my kidney function is up to approximately 40%.  Also, the doctor believes I will make a full recovery, without any long-term damage to my kidneys.  He is calling this an “acute kidney injury”, versus a “chronic kidney disease.”  So that is comforting. 

Life has certainly changed in our house.  I didn't realize how much I did each day, until I couldn't do anything.  My sweet mother-in-law, Judy, came down from Montana on November 1st to stay with us, and she is still here.  She said she’ll be with us until I am well.  Judy is my new hero.   She takes care of my boys and my house with as much care as if they are her own.  I know that she is enjoying this extended time with her grandsons, who she wouldn't normally have been able to spend so much time with.  (I know God has many “hidden” blessings in this!)  But she has already been over a month away from her own home, her husband and her life in Montana, and I know that must be difficult at times.  She never complains.  She smiles and says she wants to be here. 

Judy and the boys, on Mt. Lemmon
My church family has been amazing, too.  A dear girlfriend of mine arranged for meals for us, and for the past 5-6 weeks, we've had meals coming in four times a week.  It has been such a blessing to not have to worry about dinner.  Plus all the prayers, cards of encouragement, and support have been humbling and overwhelming. 

I've seen God’s hand of provision and blessing in all of this.  Oh don’t get me wrong, it kind of sucks to be sick like this – but to see everything being taken care of without me is a blessing I can’t describe well enough.  It helps me to be able to relax and get the rest I need, which is helping me to recover. 

No, I’m not getting much done these days.  There are some days where getting a shower and changing clothes is my big accomplishment.  Other days, it’s a trip to the store, or maybe even a dinner out.  Tonight, I made dinner for the first time in several weeks, and it felt so good!  (And I got so tired.)
 
I had to drop out of ministries at church and BSF for the time being, which was very difficult for me (though, being so ill, I couldn't do them anyway).  And for these things, it mostly had to do with the chemotherapy – they don’t want me working around children, and at church that is all that I do.  What a great time to under chemotherapy – right in the middle of cold and flu season!  Yay for suppressed immune systems!

In all of these unexpected changes and challenges, I am so grateful for the hope of a full recovery.  I am grateful that I do not have cancer, or a chronic kidney disease, or that I didn't need dialysis or a transplant – I am grateful that I will LIVE!!  That was one thing that was scary to me in the beginning – not knowing what was happening to me, and wondering how bad it really was.  I can handle this temporary “sabbatical” (as my husband jokingly called it), and I have learned to humbly accept the help that we greatly need. 

As my health improves, I hope to post more – I do have thoughts, events, and even stitching to share.  I am unable to do any stitching these days, but I did finish up a few things over the summer before I got sick.  Of course my boys provide endless hours of entertainment and challenges – they are such a joy.  I think ages three and five are (so far) the most fun. 

Their new favorite thing - riding bikes.
I have so much to be thankful for, and so much to get well for!!  And so much to praise God for.  

"So do not fear, for I am with you; do not be dismayed, for I am your God.  I will strengthen you and help you; I will uphold you with my righteous right hand.
(Isaiah 41:10)